Key Points

  • Lynch syndrome is a rare, inherited condition that increases your risk of developing bowel cancer and sometimes other cancers
  • Lynch syndrome accounts for about 3% of all bowel cancer
  • Regular bowel screening by colonoscopy can prevent bowel cancers developing
  • Bowel screening usually starts from the age of 25 years and is performed on a one to two-yearly basis
  • People with Lynch syndrome are also at increased risk of developing certain other cancers such as uterine (womb), urinary tract, ovary and small bowel
  • Genetic testing is available for families with this syndrome
  • When you have Lynch Syndrome, each of your children have a 1 in 2 (50%) chance of inheriting it

The aim of the NZFGCS is to reduce the number of cancers occurring in families by facilitating the required bowel screening for registered families

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